European Framework for the Evaluation of Organ Transplants
WP4 - Development of data dictionary
The aim of the WP is to develop a common data dictionary and definitions. In order to reach this goal, some tasks have to be carried out:
To assemble and to compare data sets definitions currently used by organizations in Europe to evaluate outcome as well as quality and safety in deceased donation and organ transplantation.
To develop a common data dictionary defining and describing all pertinent variables necessary to evaluate outcome and risk factors for quality and safety in deceased donation and organ transplantation.
To determine a required "minimum" and optional "expanded" data set of variables to be collected by all participants of the consortium for analyzing outcome and risk factors in deceased donation and organ transplantation.
The data dictionary will describe individual variables and define the data set that will allow risk-benefit analyses in donation and transplantation of kidney, pancreas, liver, intestine, heart and lung. Building on the outcome of the survey and recommendations described under the first task, existing definitions will be discussed and if acceptable confirmed.